haemophiliac

简明释义

英[ˌhiːməˈfɪliæk]美[ˌhiːməˈfɪliæk]

n. 血友病患者（等于 hemophiliac）

复 数 h a e m o p h i l i a c s

英英释义

单词用法

同义词

反义词

例句

1.The new treatment options have greatly improved the quality of life for haemophiliacs 血友病患者.

新的治疗方案大大改善了血友病患者的生活质量。

2.During the fundraiser, we learned more about the challenges faced by haemophiliacs 血友病患者 in accessing care.

在募款活动中，我们了解到血友病患者在获得护理方面面临的挑战。

3.In the support group, many families shared their experiences with raising a haemophiliac 血友病患者 child.

在支持小组中，许多家庭分享了抚养一个血友病患者孩子的经历。

4.The doctor explained that a haemophiliac 血友病患者 must be careful during sports activities.

医生解释说，血友病患者在运动时必须小心。

5.A haemophiliac 血友病患者 should always carry a medical alert card.

一个血友病患者应该始终携带医疗警报卡。

作文

Haemophilia is a genetic disorder that affects the blood's ability to clot. Individuals who suffer from this condition are known as haemophiliacs (血友病患者). This disorder is typically inherited and primarily affects males, although females can be carriers of the gene. The severity of haemophilia can vary; some individuals may experience only mild symptoms, while others can have severe bleeding episodes that require immediate medical attention. Understanding what it means to be a haemophiliac (血友病患者) is essential for both those affected and their families.The condition arises from a deficiency in certain clotting factors, which are proteins in the blood that help control bleeding. The most common types of haemophilia are A and B, with type A being caused by a deficiency of factor VIII and type B by a deficiency of factor IX. As a result, haemophiliacs (血友病患者) often face challenges in everyday activities. Even minor injuries can lead to excessive bleeding, which can be life-threatening if not managed properly.For many haemophiliacs (血友病患者), the diagnosis comes early in childhood. Parents may notice unusual bruising or prolonged bleeding from cuts, leading them to seek medical advice. Once diagnosed, treatment typically involves regular infusions of the missing clotting factor, allowing individuals to lead relatively normal lives. However, the cost and accessibility of these treatments can be significant challenges for many families.Living with haemophilia also requires lifestyle adjustments. Haemophiliacs (血友病患者) must be cautious about engaging in physical activities that could result in injury. Contact sports are generally discouraged, and protective gear is often recommended for even low-risk activities. Education about the condition is crucial—not only for the individual but also for friends, family, and teachers. Awareness can help create a supportive environment where haemophiliacs (血友病患者) feel safe and understood.Social stigma can also play a role in the lives of haemophiliacs (血友病患者). Some individuals may feel isolated or different due to their condition, which can lead to emotional challenges. Support groups and counseling can be beneficial for both haemophiliacs (血友病患者) and their families, providing a space to share experiences and coping strategies.Advancements in medical research continue to improve the lives of haemophiliacs (血友病患者). Gene therapy is an emerging treatment option that aims to address the underlying genetic cause of haemophilia, potentially offering a long-term solution. As researchers explore new avenues for treatment, there is hope for better management of the condition and improved quality of life for those affected.In conclusion, being a haemophiliac (血友病患者) comes with unique challenges, but with proper management and support, individuals can lead fulfilling lives. It is important for society to foster understanding and awareness of haemophilia, ensuring that haemophiliacs (血友病患者) receive the empathy and assistance they need. Through education, advocacy, and continued research, we can work towards a future where living with haemophilia is less daunting and more manageable.

血友病是一种影响血液凝固能力的遗传性疾病。患有这种疾病的人被称为血友病患者。这种疾病通常是遗传的，主要影响男性，尽管女性也可以是基因的携带者。血友病的严重程度可能有所不同；一些人可能仅表现出轻微症状，而另一些人则可能经历需要立即医疗干预的严重出血事件。理解作为一名血友病患者的含义，对于受影响的人及其家庭至关重要。该疾病是由于某些凝血因子的缺乏而引起的，这些凝血因子是血液中的蛋白质，有助于控制出血。最常见的血友病类型为A型和B型，其中A型是由于凝血因子VIII缺乏引起的，而B型则是由于凝血因子IX缺乏引起的。因此，血友病患者在日常活动中经常面临挑战。即使是轻微的伤害也可能导致过度出血，如果不及时处理，可能会危及生命。对于许多血友病患者来说，诊断通常在儿童时期就会出现。父母可能会注意到异常的淤血或割伤后出血时间过长，从而寻求医疗建议。一旦确诊，治疗通常涉及定期注射缺失的凝血因子，使个体能够过上相对正常的生活。然而，这些治疗的费用和可及性对许多家庭来说可能是重大挑战。与血友病共存还需要生活方式的调整。血友病患者必须小心参与可能导致受伤的体育活动。一般不鼓励接触性运动，并且通常建议在低风险活动中佩戴保护装备。对这种疾病的教育至关重要——不仅对个体，对朋友、家人和老师也是如此。提高意识可以帮助创造一个支持性的环境，让血友病患者感到安全和被理解。社会污名也可能在血友病患者的生活中发挥作用。一些人可能因自己的病情而感到孤立或与众不同，这可能导致情感上的挑战。支持小组和咨询对血友病患者及其家庭可能是有益的，提供一个分享经验和应对策略的空间。医学研究的进展继续改善血友病患者的生活。基因疗法是一种新兴的治疗选择，旨在解决血友病的根本遗传原因，可能提供长期解决方案。随着研究人员探索新的治疗途径，人们对更好地管理这种疾病和改善受影响者生活质量的希望不断增强。总之，作为一名血友病患者的生活充满独特挑战，但通过适当的管理和支持，个人可以过上充实的生活。社会促进对血友病的理解和意识至关重要，以确保血友病患者获得他们所需的同情和帮助。通过教育、倡导和持续的研究，我们可以共同努力，朝着一个与血友病共存的未来，变得不那么令人畏惧，更加可控。